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HOW?
by Dan Wilkins
The door closes
And in the still and silence of my office
The roll of the chair
Creaks and cricks the hardwood floor.
My son, not Two
From the distance
Squeals!
And I mean Sq-u-e-e-e-ls with delight!
Running on stubby, falling forward legs,
Hands still raised for balance,
He knows I'm here.
He knows I'm home.
Suitcase down.
Briefcase down.
Car keys down.
Shoulders aching from the drive.
Ears still popping from the flight.
I drink in the color and smell of home
And I wait.
I await the smile and the touch
that mean so much
and instantly, magically melt
to the Daddy, Daddy, Daddy
Thumping closer,
Thumping louder,
Thumping faster
Through the kitchen and the hall.
Knowing nothing of inertia
He turns the corner
With the grace of an Albatross;
Like a cartoon.
With an Ert, Ert, Ert,
Of skidding foot
And groaning concentration,
He barely misses the Jade
And slams into my knees
With a slap of meaty hands
And a triumphant A-h-h-h of teeth
and wild hair.
I bend down close to smell his head.
How do I tell him ...
This beautiful boy
This Beautiful, breathless, excitable boy,
Who tonight I'll hold and put to bed
When all are fed,
And all is said and done.
How could I tell him?
How will I ever tell him,
That to some in this world
I am not worthy.
That to some in this world
I am expendable.
That there are those in this world
Who do not know me
(not like he does)
That there are those in this world
Who do not see me
(not like he does)
That there are those in this world
Who would rather have me dead
than Dad.
© 2000 Dan Wilkins. In Foursight edited by Dave
Hinsburger
To support Dan's work, go to http://www.thenthdegree.com/
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You Get Proud by
Practicing
by Laura Hershey
If you are not proud
For who you are, for what you say, for how you look;
If every time you stop
To think of yourself, you do not see yourself glowing
With golden light; do not, therefore, give up on yourself.
You can get proud.
You do not need
A better body, a purer spirit, or a Ph.D.
To be proud.
You do not need
A lot of money, a handsome boyfriend, or a nice car.
You do not need
To be able to walk, or see, or hear,
Or use big, complicated words,
Or do any of those things that you just canít do
To be proud. A caseworker
Cannot make you proud,
Or a doctor.
You only need more practice.
You get proud by practicing.
There are many many ways to get proud.
You can try riding a horse, or skiing on one leg,
Or playing guitar,
And do well or not so well,
And be glad you tried
Either way.
You can show
Something you've made
To someone you respect
And be happy with it no matter
What they say.
You can say
What you think, though you know
Other people do not think the same way, and you can
keep saying it, even if they tell you
You are crazy.
You can add your voice
All night to the voices
Of a hundred and fifty others
In a circle
Around a jail house
Where your brothers and sisters are being held
For blocking buses with no lifts,
Or you can be one of the ones
Inside the jail house,
Knowing of the circle outside.
You can speak your love
To a friend
Without fear.
You can find someone who will listen to you
Without judging you or doubting you or being
Afraid of you
And let you hear yourself perhaps
For the very first time.
These are all ways
Of getting proud.
None of them
Are easy, but all of them
Are possible. You can do all of these things,
Or just one of them again and again.
You get proud
By practicing.
Power makes you proud, and power
Comes in many fine forms
Supple and rich as butterfly wings.
It is music
when you practice opening your mouth
And liking what you hear
Because it is the sound of your own
True voice.
It is sunlight
When you practice seeing
Strength and beauty in everyone,
Including yourself.
It is dance
when you practice knowing
That what you do
And the way you do it
Is the right way for you
And cannot be called wrong.
All these hold
More power than weapons or money
Or lies.
All these practices bring power, and power
Makes you proud.
You get proud
By practicing.
Remember, you weren't the one
Who made you ashamed,
But you are the one
Who can make you proud.
Just practice,
Practice until you get proud, and once you are proud,
Keep practicing so you wonít forget.
You get proud
By practicing.
To support Laura's work, go to http://www.cripcommentary.com
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Disabled Country
Neil Marcus
If there was a country called disabled,
I would be from there.
I live disabled culture, eat disabled food,
make disabled love, cry disabled tears,
climb disabled mountains and tell disabled stories.
If there was a country called disabled,
I would say she has immigrants that come to her
From as far back as time remembers.
If there was a country called disabled,
Then I am one of its citizens.
I came there at age 8. I tried to leave.
Was encouraged by doctors to leave.
I tried to surgically remove myself from disabled country
but found myself, in the end, staying and living there.
If there was a country called disabled,
I would always have to remind myself that I came from there.
I often want to forget.
I would have to remember
to remember.
In my lifes journey
I am making myself
At home in my country.
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I Am Not One Of
The
Cheryl Marie Wade
I am not one of the physically challenged-
I'm a sock in the eye with gnarled fist
I'm a French kiss with cleft tongue
I'm orthopedic shoes sewn on a last of your fears
I am not one of the differently abled-
I'm an epitaph for a million imperfect babies left untreated
I'm an ikon carved from bones in a mass grave at Tiergarten,
Germany
I'm withered legs hidden with a blanket
I am not one of the able disabled-
I'm a black panther with green eyes and scars like a picket
fence
I'm pink lace panties teasing a stub of milk white thigh
I'm the Evil Eye
I'm the first cell divided
I'm mud that talks
I'm Eve I'm Kali
I'm The Mountain That Never Moves
I've been forever I'll be here forever
I'm the Gimp
I'm the Cripple
I'm the Crazy Lady
I'm The Woman With Juice
copyright 1987 by Cheryl Marie Wade
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Circle Stories
Riva Lehrer
Excerpt from Riva's website: "Circle
Stories is a series of portraits of people in a variety of
fields, including the arts, academia and political activism.
Each has a significant physical disability, and an interest
in exploring body issues in his or her own work. This project
began in 1997 and currently includes nine works.
The word Circle refers to several
aspects of the project. The portraiture method is a circular
one, involving extensive interviews with each participant.
We talk about their lives, work, and experience of disability.
We both suggest possible imagery, seeking imagery that accurately
reflects their experience. In this way we arrive at a collaborative
composition."

Circle Story #2: Tekki Lomnicki
1999, mixed media on paper, 48" x 36"
Tekki Lomnicki, performance artist and writer, has done numerous
solo and collaborative shows. Her work maps her identity as
a Little Person, and her costume-embellished pieces explore,
parody and manipulate the ways that small stature is perceived.
A recent piece, Letting the Dead Rest, was featured at a number
of Chicago festivals.
To view all of the portraits, visit Riva Lehrer's website:
http://home.earthlink.net/~rivalehrer/circlestories/csframesest.html
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Quilt Art by Amy
Amy McWilliams

EMPOWERMENT EXPLOSION
Excerpt from Amy's website: "When I first began this
project, my idea was to make a small wall hanging that would
symbolize various aspects of our movement. It was to be something
that would be empowering to look at, something that in times
of distress would reenergize my spirit. Words that touch my
soul have been embellished in this quilt. Quotes from Abraham
Lincoln, Martin Luther King, Jr., Justin Dart, John F. Kennedy,
Margaret Mead, Elizabeth Cady Stanton and many others have
found their way into the many weaves of the lattices, because
they, like the lattices are words and sentiments that bond
us...I was wrong to believe that I could make something of
this nature with the end result being a "small"
wall hanging. For 20 months my mind did not rest dreaming
up new squares and watching my quilt grow. Once it reached
94"x64" I knew that it was time to call it a quilt,
realizing however, that not everything nor everyone that empowers
me could not possibly fit within it's perimeters. That is
why this is only the beginning of a series of quilts that
I am creating that will focus on our heroes, our triumphs,
and out defeats; telling our stories to pass on to future
generations. The quilt contains 27 squares 23 are what I consider
"universal" squares. They represent issues or Federal
laws that all Americans with disabilities feel a connection
with. One square represents a PA State law, and the remaining
three are symbolic of my connection to the movement. The border
which is made from the scraps of the squares reads "WITH
LIBERTY AND JUSTICE FOR ALL" twice around the quilt.
The pieced letters are 4"x4". It is for the most
part; machine pieced with the exception of some hand applicaed
squares that are quilted by hand. In the process of quilting
it, I added multicolored glass seed beads to add variety and
sparkle."
For more information about Amy McWilliams' quilts,
please visit: http://www.freedomslight.org/quiltart/
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Tellin' Tales Theatre
Tekki Lomnicki

http://www.tellintales.org/
Excerpt from the website: "Tellin' Tales
Theatre's mission is to build community through the art of
storytelling. Our company gathers the stories of groups or
individuals-including adults and children with disabilities-and
creates theatrically innovative performances using mentoring
and collaboration. Tellin' Tales is dedicated to providing
a venue for bringing together diverse people. Our aim is to
help our audiences and our performers recognize their commonalties
and build a sense of community where none existed before."
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Institute on Disability
Culture Manifesto
Steve Brown
"The Institute on Disability Culture's
mission since 1994 has been to promote pride in the history,
activities, and cultural identity of individuals with disabilities
throughout the world."
Steve Brown, the Director of the Institute,
publishes a free online newsletter called Manifesto.
To read the newsletter, visit: http://www.dimenet.com/disculture/cgi/getlink.cgi?29R.
There is also an excellent list of disability
cultural resources entitled, "Producers of Our Culture,"
on the Institute's website at: http://www.dimenet.com/disculture/cgi/getlink.cgi?45R
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Tom Olin, Photographer
Excerpt from Mouth Magazine: "Tom Olin has covered
the disability rights beat since 1983. Thanks to his photography,
many of our finest activists will not be forgotten. Currently,
he is archiving his work for the Smithsonian. Tom has a website
under construction where you will be able to purchase rights
to reproduce photographs from his half-million-image archive.
Still, when disability action is happening, Tom is there.
He covers the national activism of Adapt and Not Dead Yet.
He photographs conferences of the National Council of Independent
Living, of TASH, of statewide independent living councils,
and would likely photograph your group's work as well. (Note:
he gets paid for these gigs.) Invite him by email to crippower@aol.com."
For more information on Tom Olin's work, visit: http://www.mouthmag.com/olinpage.htm
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MOUTH Magazine:
http://www.mouthmag.com/
Free Hand Press, Inc.
4201 SW 30th Street
Topeka, Kansas 66614-3023
Editor-designer: Lucy Gwin
General Officer: Cal Grandy
Clipper: David Anthony
Illustrator: Scott Chambers
Voice: Marcia Yaroslow
Heroes: all of us listed under "survived by..."
Ragged Edge Magazine:
http://www.ragged-edge-mag.com/
"WHO WE ARE: Ragged Edge magazine is successor to the
award-winning periodical, The Disability Rag. In Ragged Edge,
and on this website, you'll find the best in today's writing
about society's "ragged edge" issues: medical rationing,
genetic discrimination, assisted suicide, long-term care,
attendant services. We cover the disability experience in
America -- what it means to be a crip living at the start
of the 21st century."
editor@raggededgemagazine.com
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Do
you know of other cultural expression of Disability pride that
we should add to this website? If so, email us at info@disabledandproud.com
and let us know what ideas you have!
Remember:
Disability Is Beautiful. Difference Is Beautiful. That makes
you Beautiful!
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